All the latest IWKPA news, straight from the team.
Coronavirus (COVID-19) Update
Due to Coronavirus the Committee has had to run a little differently this year.
All fundraising events we planned to attend were cancelled due to lockdown and also not being able to socially distance. Next year, we are hoping to attend both the 1940's weekend at the Steam Railway in July and Wolverton Manor in September to ensure that fundraising continues for the IWKPA.
We are still be collecting for gifts to put on our stall for both these events - if there are any donations, please contact Ann Daly on 01983 611671 or email@example.com and we can arrange for collection.
Committee meetings have not taken place, however the members have all kept in touch by email or phone and have been able to "meet" virtually.
The AGM has not happened either, however we will be planning one for March/ April 2021 - details will be added to the website in due course.
New members for the committee will be welcomed at any time - please contact the Chair - Ann Daly for more details
Coronavirus has not changed the way the IWKPA support patients in need - either contact the nurses at the Renal Unit for support or contact Ann Daly on 01983 611671 or firstname.lastname@example.org for more support/guidance/signposting.
Donation from Calbourne Car Boot
We were delighted to be chosen by Calbourne Car Boot Sale as one of their two charities of the year, along with the IOW Brainy Bunch. We were presented the very generous cheque of £1,386.67, which will go directly to supporting kidney patients on the Island. Thank you Calbourne Car Boot Sale!
IWKPA Quiz at Brading Roman Villa
A wonderful afternoon of fun was enjoyed by all at our recent quiz afternoon.
Thank you to all who organised, supported and attended this event.
Wolverton Manor Fayre
The glorious weather ensured that there were plenty of visitors to the fayre this year and helped raise the wonderful sum of £300 for IWKPA.
Huge thank you from Ann for all that helped to support the charity.
We successfully raised £169.70 by collecting at Morrison's Store in Newport.
The Chairperson extends her thanks to everyone that helped as such an amount could not have been raised without a good team effort.
Committee Members Claire and Karen attended the Spyglass Inn in Ventnor on the 3rd of December and were presented a cheque for £1,180.
The money was raised from the sales of a CD which was the brain child of Simon Gooden of St. Lawrence and two of his musician friends Mark Innocent and Mike Huddart. Simon has received his third transplant and is doing well and wanted to give something back help other kidney patients. Many thanks to them all.
Wolverton Manor Garden Fete
Joan our social secretary arranged for us to have a stall at the Wolverton Manor Garden Fete held last weekend. We tried desperately to erect the gazebo on Friday and wish we had had a camera handy. The rain fell down and we were soaked to our undies but did manage to get it set up.
Saturday was fine and after setting up the stall did very well.
The stall was called everyone a winner, very simple with lots of small gifts and prizes and we did very well. Overnight the wind and rain blew so hard our gazebo landed upside down but thankfully intact which was better than most on the site.
Sunday was windy but again we did very well and had many people coming up to us and talking about their experiences so our networking was brilliant.
We cleared £210 and must say a big thank you to Shelly, Claire, Anne and Shirley for all their hard work.
IOW Festival Tickets Winner
We were very lucky once again to have a pair of Isle of Wight Festival tickets donated to the IWKPA, as the star prize in our latest fundraising raffle.
We're delighted to annouce that the winner is Mark Isaacson and we hope that he had a great time at the Festival.
Thank you to everyone who bought tickets and helped us raise important funds to continue our work in supporting local people on the Island.
My husband Alex has been on HD dialysis for 4 years and for nearly 2 years has been using the NX stage system at home. Having dialysis at home does give us a more flexible lifestyle and more confidence to manage our new way of life. In 2014 we decided to travel to Spain for a holiday. The Nx stage system can be transported for holidays, but we decided to arrange for Alex to have his treatment at the Hospital in Torromolinos. We contacted Freedom Travel and they were very helpful and made all the arrangements. We had to arrange to have a blood test for Hepatitis and HIV and swabs for MRSA about a month before travel and the results forwarded to Freedom Travel. We then received an introduction letter to the dialysis unit at Torromolinos and we just turned up at the time and date as arranged. We just had to take our passport and EH1C card. We had the early morning session and Alex had a taxi from the hotel to the unit and they arranged a taxi back at lunch time.
The treatment he received was excellent. The staff caring and efficient, although only a few had any English Alex had no problems with communication. A Doctor visited the unit daily. We went to the same unit last November and they remembered him and hope to see him again next year.
As Spain was such a success with went to Tenerife last February and now there will be no stopping us with our travels. Going abroad is obviously not as simple as it used to be prior to dialysis it just takes a bit longer to arrange but well worth it when you are relaxing in the sun with a nice glass of wine. In Spain we stayed in Benalmedina and the hotel had a bus stop outside and a lift from the foyer down to the beach so it was ideal for us as Alex doesn't walk too far.
Freedom have a list of several holiday destinations that take the EH1C card and others where you have to pay.
Any help we can give please get in touch with us via the IWKPA and Happy Holidays.
Joan and Alex Bailey